117 Encina Commons
615 Crothers Way, Stanford University, Stanford, CA 94305
USA
Presenter: Julia Simard, ScD, SM
“Studying Systemic Lupus in Sweden: Pros and Cons of Register-based Data in the Setting of a Chronic Disease”
Assistant Professor of Health Research and Policy (Epidemiology) and, by courtesy, of Medicine (Immunology And Rheumatology)
All research in progress seminars are off-the-record. Any information about methodology and/or results are embargoed until publication.
Abstract
National registers such as the Scandinavian Health Registers are often viewed as a holy grail. These types of data have been used for decades, predating the big data buzz. While the population-based nature of these data overcome many methodologic challenges regarding appropriate control selection, representativeness, generalizability, and statistical power, their limitations should be equally acknowledged. Using a current national register linkage across nearly one dozen Swedish registers, this talk will highlight obstacles and benefits in the setting of reproductive and perinatal outcomes in systemic lupus erythematosus (SLE), a chronic inflammatory disease.